2004 Minnesota Statutes

     144.2219 Transfers of information to research entities. 

    Information from the birth defects information system that 
 does not contain identifying information may be shared with 
 research entities upon request for studies approved by the 
 commissioner and appropriate institutional review boards.  For 
 studies approved by the commissioner that require identifying 
 information about a child or a parent or legal guardian of the 
 child, the commissioner shall contact the parent or legal 
 guardian to obtain informed consent to share identifying 
 information with the research entity.  Notwithstanding section 
 144.335, subdivision 3a, paragraph (d), the parent or legal 
 guardian must provide informed consent before the information 
 may be shared.  The commissioner must collect all reasonable 
 costs of locating and obtaining consent from the research entity.

    HIST: 2004 c 288 art 6 s 15; 2004 c 290 s 29 

*   NOTE:  This section, as added by Laws 2004, chapter 288, 
*article 6, section 15, and Laws 2004, chapter 290, section 29, 
*is effective upon receipt of a federal grant to establish a 
*birth defects information system.  Laws 2004, chapter 288, 
*article 6, section 15, the effective date, and Laws 2004, 
*chapter 290, section 29, the effective date.