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144.2219 Transfers of information to research entities.

Information from the birth defects information system that does not contain identifying information may be shared with research entities upon request for studies approved by the commissioner and appropriate institutional review boards. For studies approved by the commissioner that require identifying information about a child or a parent or legal guardian of the child, the commissioner shall contact the parent or legal guardian to obtain informed consent to share identifying information with the research entity. Notwithstanding section 144.335, subdivision 3a, paragraph (d), the parent or legal guardian must provide informed consent before the information may be shared. The commissioner must collect all reasonable costs of locating and obtaining consent from the research entity.

HIST: 2004 c 288 art 6 s 15; 2004 c 290 s 29

* NOTE: This section, as added by Laws 2004, chapter 288, *article 6, section 15, and Laws 2004, chapter 290, section 29, *is effective upon receipt of a federal grant to establish a *birth defects information system. Laws 2004, chapter 288, *article 6, section 15, the effective date, and Laws 2004, *chapter 290, section 29, the effective date.