HF 4406

as introduced - 91st Legislature (2019 - 2020) Posted on 03/11/2020 11:39am

A bill for an act
relating to health; adding a disorder to the list of disorders to be tested for in the
newborn screening program; amending Minnesota Statutes 2018, section 144.125,
subdivision 2.

BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF MINNESOTA:

Section 1.

Minnesota Statutes 2018, section 144.125, subdivision 2, is amended to read:

Subd. 2.

Determination of tests to be administered.

new text begin (a) new text end The commissioner shall
periodically revise the list of tests to be administered for determining the presence of a
heritable or congenital disorder. Revisions to the list shall reflect advances in medical
science, new and improved testing methods, or other factors that will improve the public
health. In determining whether a test must be administered, the commissioner shall take
into consideration the adequacy of analytical methods to detect the heritable or congenital
disorder, the ability to treat or prevent medical conditions caused by the heritable or
congenital disorder, and the severity of the medical conditions caused by the heritable or
congenital disorder. The list of tests to be performed may be revised if the changes are
recommended by the advisory committee established under section 144.1255, approved by
the commissioner, and published in the State Register. The revision is exempt from the
rulemaking requirements in chapter 14, and sections 14.385 and 14.386 do not apply.

new text begin (b) Notwithstanding paragraph (a), the following lysosomal storage disorders are included
in the list of tests to be performed under this section:
new text end

new text begin (1) globoid cell leukodystrophy (Krabbe);
new text end

new text begin (2) Fabry;
new text end

new text begin (3) Pompe;
new text end

new text begin (4) Niemann-Pick;
new text end

new text begin (5) Gaucher; and
new text end

new text begin (6) Hurler syndrome (MPS I).
new text end