1.1 	A bill for an act
1.2 	relating to insurance; health; requiring unrestricted access to services for the 
1.3 	diagnosis and treatment of rare diseases;proposing coding for new law in Minnesota 
1.4 	Statutes, chapter 62Q.
1.5 	BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF MINNESOTA:

1.6 	Section 1. [62Q.451] UNRESTRICTED ACCESS TO SERVICES FOR THE 
1.7 	DIAGNOSIS AND TREATMENT OF RARE DISEASES.
1.8 	(a) No health plan company may restrict the choice of an enrollee as to where the enrollee 
1.9 	receives services related to the diagnosis and treatment of a rare disease or condition. For 
1.10 	purposes of this section, "rare disease or condition" means any disease or condition that:
1.11 	(1) affects less than 200,000 persons in the United States; or
1.12 	(2) affects more than 200,000 persons in the United States and a drug for treatment has 
1.13 	been designated as such pursuant to United States Code, title 21, section 360bb.
1.14 	(b) Cost-sharing requirements and benefit or services limitations for the diagnosis and 
1.15 	treatment of a rare disease or condition must not place a greater financial burden on the 
1.16 	enrollee or be more restrictive than those requirements for in-network medical treatment.
1.17 	(c) This subdivision does not apply to coverage provided through a public health care 
1.18 	program under chapter 256B or 256L.

1.19 	EFFECTIVE DATE. This section is effective July 1, 2020, and applies to health plans 
1.20 	offered, issued, or renewed on or after that date.