1.1 	A bill for an act
1.2 	relating to health; modifying the hospice care bill of
1.3 	rights; requiring hospice providers to complete a
1.4 	specified survey; modifying death report requirements
1.5 	for recipients of hospice care; amending Minnesota
1.6 	Statutes 2004, sections 144A.751, subdivision 1;
1.7 	144A.755; 383B.225, subdivision 5.
1.8 	BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF MINNESOTA:

1.9 	Section 1. Minnesota Statutes 2004, section 144A.751,
1.10 	subdivision 1, is amended to read:
1.11 		Subdivision 1.Statement of rights.  An individual who
1.12 	receives hospice care ~~and the individual's family have~~ has the
1.13 	right to:
1.14 	(1) receive written information about rights in advance of
1.15 	receiving hospice care or during the initial evaluation visit
1.16 	before the initiation of hospice care, including what to do if
1.17 	rights are violated;
1.18 	(2) receive care and services according to a suitable
1.19 	hospice plan of care and subject to accepted hospice care
1.20 	standards and to take an active part in creating and changing
1.21 	the plan and evaluating care and services;
1.22 	(3) be told in advance of receiving care about the services
1.23 	that will be provided, the disciplines that will furnish care,
1.24 	the frequency of visits proposed to be furnished, other choices
1.25 	that are available, and the consequence of these choices,
1.26 	including the consequences of refusing these services;
2.1 	(4) be told in advance, whenever possible, of any change in
2.2 	the hospice plan of care and to take an active part in any
2.3 	change;
2.4 	(5) refuse services or treatment;
2.5 	(6) know, in advance, any limits to the services available
2.6 	from a provider, and the provider's grounds for a termination of
2.7 	services;
2.8 	(7) know in advance of receiving care whether the services
2.9 	are covered by health insurance, medical assistance, Medicare,
2.10 	or other health programs~~, the charges for services that will not~~
2.11 	~~be covered by Medicare, and the charges that the individual may~~
2.12 	~~have to pay~~;
2.13 	(8) ~~know what the charges are for services, no matter who~~
2.14 	~~will be paying the bill~~ receive, upon request, a good faith
2.15 	estimate of the reimbursement the provider expects to receive
2.16 	from the health plan company in which the individual is
2.17 	enrolled.  A good faith estimate must also be made available at
2.18 	the request of an individual who is not enrolled in a health
2.19 	plan company.  This payment information does not constitute a
2.20 	legally binding estimate of the cost of services;
2.21 	(9) know that there may be other services available in the
2.22 	community, including other end of life services and other
2.23 	hospice providers, and know where to go for information about
2.24 	these services;
2.25 	(10) choose freely among available providers and change
2.26 	providers after services have begun, within the limits of health
2.27 	insurance, medical assistance, or other health programs;
2.28 	(11) have personal, financial, and medical information kept
2.29 	private and be advised of the provider's policies and procedures
2.30 	regarding disclosure of such information;
2.31 	(12) be allowed access to records and written information
2.32 	from records according to section 144.335;
2.33 	(13) be served by people who are properly trained and
2.34 	competent to perform their duties;
2.35 	(14) be treated with courtesy and respect and to have the
2.36 	patient's property treated with respect;
3.1 	(15) voice grievances regarding treatment or care that is,
3.2 	or fails to be, furnished or regarding the lack of courtesy or
3.3 	respect to the patient or the patient's property;
3.4 	(16) be free from physical and verbal abuse;
3.5 	~~(16)~~ (17) reasonable, advance notice of changes in services
3.6 	or charges, including at least ten days' advance notice of the
3.7 	termination of a service by a provider, except in cases where:
3.8 	(i) the recipient of services engages in conduct that
3.9 	alters the conditions of employment as specified in the
3.10 	employment contract between the hospice provider and the
3.11 	individual providing hospice services, or creates an abusive or
3.12 	unsafe work environment for the individual providing ~~home care~~ 
3.13 	hospice services; ~~or~~ 
3.14 	(ii) an emergency for the informal caregiver or a
3.15 	significant change in the recipient's condition has resulted in
3.16 	service needs that exceed the current service provider agreement
3.17 	and that cannot be safely met by the hospice provider; or 
3.18 	(iii) the recipient is no longer certified as terminally
3.19 	ill;
3.20 	~~(17)~~ (18) a coordinated transfer when there will be a
3.21 	change in the provider of services;
3.22 	~~(18) voice grievances regarding treatment or care that is,~~
3.23 	~~or fails to be, furnished, or regarding the lack of courtesy or~~
3.24 	~~respect to the patient or the patient's property;~~
3.25 	(19) know how to contact an individual associated with the
3.26 	provider who is responsible for handling problems and to have
3.27 	the provider investigate and attempt to resolve the grievance or
3.28 	complaint;
3.29 	(20) know the name and address of the state or county
3.30 	agency to contact for additional information or assistance;
3.31 	(21) assert these rights personally, or have them asserted
3.32 	by the hospice patient's family when the patient has been judged
3.33 	incompetent, without retaliation; and
3.34 	(22) have pain and symptoms managed to the patient's
3.35 	desired level of comfort.

3.36 	Sec. 2. Minnesota Statutes 2004, section 144A.755, is
4.1 	amended to read:
4.2 	144A.755 INFORMATION AND REFERRAL SERVICES.
4.3 	The commissioner shall ensure that information and referral
4.4 	services relating to hospice care are available in all regions
4.5 	of the state.  The commissioner shall collect and make available
4.6 	information about available hospice care, sources of payment,
4.7 	providers, and the rights of patients.  The commissioner ~~may~~ 
4.8 	shall require hospice providers to ~~provide information requested~~
4.9 	~~for the purposes of this section~~ complete the National Hospice
4.10 	and Palliative Care Organization national data set survey and
4.11 	submit the survey to Hospice Minnesota as a condition of
4.12 	licensure.  The commissioner may publish and make available:
4.13 	(1) general information describing hospice care in the
4.14 	state;
4.15 	(2) limitations on hours, availability of services, and
4.16 	eligibility for third-party payments, applicable to individual
4.17 	providers; and
4.18 	(3) other information the commissioner determines to be
4.19 	appropriate.

4.20 	Sec. 3. Minnesota Statutes 2004, section 383B.225,
4.21 	subdivision 5, is amended to read:
4.22 		Subd. 5.Reports of death.  All sudden or unexpected
4.23 	deaths and all deaths which may be due entirely, or in part, to
4.24 	any factor other than natural disease must be reported to the
4.25 	medical examiner for evaluation.  These include, but are not
4.26 	limited to:
4.27 	(1) unnatural deaths, including violent deaths arising from
4.28 	homicide, suicide, or accident;
4.29 	(2) deaths associated with burns or chemical, electrical,
4.30 	or radiational injury;
4.31 	(3) maternal deaths due to abortion;
4.32 	(4) deaths under suspicious circumstances;
4.33 	(5) deaths of inmates of public institutions who have not
4.34 	been hospitalized primarily for organic disease and deaths of
4.35 	persons in custody of law enforcement officers;
4.36 	(6) deaths that occur during, in association with, or as
5.1 	the result of diagnostic, therapeutic, or anesthetic procedures;
5.2 	(7) deaths due to neglect;
5.3 	(8) stillbirths of 20 weeks or longer gestation unattended
5.4 	by a physician;
5.5 	(9) sudden deaths of persons not disabled by recognizable
5.6 	disease;
5.7 	(10) unexpected deaths of persons notwithstanding a history
5.8 	of underlying disease;
5.9 	(11) deaths of persons to be cremated if an autopsy was not
5.10 	performed;
5.11 	(12) deaths in which a fracture of a major bone such as a
5.12 	femur, humerus, or tibia, has occurred within the past six
5.13 	months;
5.14 	(13) deaths unattended by a physician occurring outside of
5.15 	a licensed health care facility;
5.16 	(14) deaths of persons not seen by their physician within
5.17 	90 days of demise, or within 180 days for deaths of persons
5.18 	under the care of a licensed hospice provider;
5.19 	(15) physician attended deaths of persons occurring in an
5.20 	emergency department; or
5.21 	(16) deaths of unborn or newborn infants in which there has
5.22 	been maternal use of or exposure to unprescribed controlled
5.23 	substances.
5.24 	No person, other than the medical examiner, shall issue a
5.25 	record of death in cases of accidental, suicidal, violent, or
5.26 	mysterious deaths, including suspected homicides, occurring in
5.27 	the county.

5.28 	Sec. 4. EFFECTIVE DATE.
 5.29 	Section 2 is effective January 1, 2006.