HF 2497

as introduced - 90th Legislature (2017 - 2018) Posted on 03/23/2017 01:35pm

A bill for an act
relating to health; establishing the G6PD enzyme deficiency awareness program;
appropriating money; amending Minnesota Statutes 2016, section 144.1255,
subdivision 1; proposing coding for new law in Minnesota Statutes, chapter 144.

BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF MINNESOTA:

Section 1.

Minnesota Statutes 2016, section 144.1255, subdivision 1, is amended to read:

Subdivision 1.

Creation and membership.

(a) By July 1, 2003, the commissioner of
health shall appoint an advisory committee to provide advice and recommendations to the
commissioner concerning tests and treatments for heritable and congenital disorders found
in newborn children. Membership of the committee shall include, but not be limited to, at
least one member from each of the following representative groups:

(1) parents and other consumers;

(2) primary care providers;

(3) clinicians and researchers specializing in newborn diseases and disorders;

(4) genetic counselors new text begin with knowledge of genetic factors in ethnic populations new text end ;

(5) birth hospital representatives;

(6) newborn screening laboratory professionals;

(7) nutritionists; deleted text begin and
deleted text end

new text begin (8) culturally specific experts in clinical methodologies and practice; and
new text end

deleted text begin (8) deleted text end new text begin (9) new text end other experts as needed representing related fields such as emerging technologies
and health insurance.

(b) The terms and removal of members are governed by section 15.059. Members shall
not receive per diems but shall be compensated for expenses.

Sec. 2.

new text begin [144.1461] G6PD ENZYME DEFICIENCY AWARENESS PROGRAM.
new text end

new text begin Subdivision 1. new text end

new text begin Purpose. new text end

new text begin G6PD enzyme deficiency is an inherited condition which is
caused by a deficiency of the enzyme glucose-6-phosphate dehydrogenase (G6PD) in the
body. This genetic predisposition is found in persons of African, Asian, Middle Eastern,
and Mediterranean heritage, and Native American people. This deficiency can cause
hemolytic anemia from the destruction of red blood cells. The commissioner in consultation
with ethnic councils and commissions shall establish an education and awareness program
on G6PD enzyme deficiency in order to disseminate specific health-related information on
G6PD enzyme deficiency.
new text end

new text begin Subd. 2. new text end

new text begin Education and awareness program and grants. new text end

new text begin (a) The commissioner of
health in consultation with ethnic councils and commissions shall establish a program to
bring awareness of the predisposition to G6PD enzyme deficiency to affected populations
and address ways to avoid triggers that can result in hemolytic anemia. Target populations
for the education and awareness program are individuals of African, Asian, Middle Eastern,
and Mediterranean heritage, and Native American people.
new text end

new text begin (b) To the extent funds are available, the commissioner of health shall award competitive
grants to eligible applicants for projects directed at increasing awareness of G6PD enzyme
deficiency. The projects shall be community-based and include arts-based culturally specific
methods to improve public awareness through defining health protection measures, risk
factor detection, and health enhancement by avoiding certain disease triggers.
new text end

new text begin Subd. 3. new text end

new text begin Health protection. new text end

new text begin In order to prevent episodes of hemolytic anemia in target
populations, the commissioner shall: (1) support good food manufacturing processes; (2)
address potential triggers in water, air, and soil; (3) focus on identifying triggers; and (4)
outline ways to avoid triggers. The commissioner shall coordinate with other community
groups such as the Cultural and Ethnic Communities Leadership Council on activities related
to health initiatives to promote health protection and disease prevention as it pertains to
G6PD enzyme deficiency.
new text end

Sec. 3. new text begin RECOMMENDATION.
new text end

new text begin The commissioner of health shall request that the Newborn Screening Advisory
Committee add G6PD enzyme deficiency to the newborn screening tests.
new text end

Sec. 4. new text begin APPROPRIATION.
new text end

new text begin $....... in fiscal year 2018 is appropriated from the general fund to the commissioner of
health for the purposes of section 2.
new text end