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HF 3530

1st Engrossment - 90th Legislature (2017 - 2018) Posted on 03/26/2018 04:40pm

KEY: stricken = removed, old language.
underscored = added, new language.

Bill Text Versions

Engrossments
Introduction Posted on 03/14/2018
1st Engrossment Posted on 03/26/2018

Current Version - 1st Engrossment

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A bill for an act
relating to health; establishing an advisory council on pediatric autoimmune
neuropsychiatric disorders associated with streptococcal infections and pediatric
acute-onset neuropsychiatric syndrome; proposing coding for new law in Minnesota
Statutes, chapter 144.

BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF MINNESOTA:

Section 1.

new text begin [144.131] ADVISORY COUNCIL ON PANDAS AND PANS.
new text end

new text begin Subdivision 1. new text end

new text begin Advisory council established. new text end

new text begin The commissioner of health shall establish
an advisory council on pediatric autoimmune neuropsychiatric disorders associated with
streptococcal infections (PANDAS) and pediatric acute-onset neuropsychiatric syndrome
(PANS) to advise the commissioner regarding research, diagnosis, treatment, and education
relating to PANDAS and PANS.
new text end

new text begin Subd. 2. new text end

new text begin Membership. new text end

new text begin (a) The advisory council shall consist of 14 public members
appointed according to paragraph (b) and two members of the legislature appointed according
to paragraph (c).
new text end

new text begin (b) The commissioner shall appoint the following public members to the advisory council
in the manner provided in section 15.0597:
new text end

new text begin (1) an immunologist who is licensed by the Board of Medical Practice and who has
experience treating PANS with the use of intravenous immunoglobulin;
new text end

new text begin (2) a health care provider who is licensed and practicing in Minnesota and who has
experience treating persons with PANS and autism spectrum disorder;
new text end

new text begin (3) a representative of a nonprofit PANS advocacy organization;
new text end

new text begin (4) a family practice physician who is licensed by the Board of Medical Practice and
practicing in Minnesota and who has experience treating persons with PANS;
new text end

new text begin (5) a medical researcher with experience conducting research on PANDAS, PANS,
obsessive-compulsive disorder, and other neurological disorders;
new text end

new text begin (6) a health care provider who is licensed and practicing in Minnesota and who has
expertise in treating patients with eating disorders;
new text end

new text begin (7) a representative of a professional organization in Minnesota for school psychologists
or school social workers;
new text end

new text begin (8) a child psychiatrist who is licensed by the Board of Medical Practice and practicing
in Minnesota and who has experience treating persons with PANS;
new text end

new text begin (9) a pediatrician who is licensed by the Board of Medical Practice and practicing in
Minnesota and who has experience treating persons with PANS;
new text end

new text begin (10) a representative of an organization focused on autism spectrum disorder;
new text end

new text begin (11) a parent of a child who has been diagnosed with PANS and autism spectrum disorder;
new text end

new text begin (12) a social worker licensed by the Board of Social Work and practicing in Minnesota;
new text end

new text begin (13) a designee of the commissioner of education with expertise in special education;
and
new text end

new text begin (14) a representative of health plan companies that offer health plans in the individual
or group markets.
new text end

new text begin (c) Legislative members shall be appointed to the advisory council as follows:
new text end

new text begin (1) the Subcommittee on Committees of the Committee on Rules and Administration
in the senate shall appoint one member from the senate; and
new text end

new text begin (2) the speaker of the house shall appoint one member from the house of representatives.
new text end

new text begin (d) The commissioner of health or a designee shall serve as a nonvoting member of the
advisory council.
new text end

new text begin Subd. 3. new text end

new text begin Terms. new text end

new text begin Members of the advisory council shall serve for a term of three years
and may be reappointed. Members shall serve until their successors have been appointed.
new text end

new text begin Subd. 4. new text end

new text begin Administration. new text end

new text begin The commissioner of health or the commissioner's designee
shall provide meeting space and administrative services for the advisory council.
new text end

new text begin Subd. 5. new text end

new text begin Compensation and expenses. new text end

new text begin Public members of the advisory council shall
not receive compensation but may be reimbursed for allowed actual and necessary expenses
incurred in the performance of the member's duties for the advisory council, in the same
manner and amount as authorized by the commissioner's plan adopted under section 43A.18,
subdivision 2.
new text end

new text begin Subd. 6. new text end

new text begin Chair; meetings. new text end

new text begin (a) At the advisory council's first meeting, and every two
years thereafter, the members of the advisory council shall elect from among their
membership a chair and a vice-chair, whose duties shall be established by the advisory
council.
new text end

new text begin (b) The chair of the advisory council shall fix a time and place for regular meetings. The
advisory council shall meet at least four times each year at the call of the chair or at the
request of a majority of the advisory council's members.
new text end

new text begin Subd. 7. new text end

new text begin Duties. new text end

new text begin The advisory council shall:
new text end

new text begin (1) advise the commissioner regarding research, diagnosis, treatment, and education
relating to PANDAS and PANS;
new text end

new text begin (2) annually develop recommendations on the following issues related to PANDAS and
PANS:
new text end

new text begin (i) practice guidelines for diagnosis and treatment;
new text end

new text begin (ii) ways to increase clinical awareness and education of PANDAS and PANS among
pediatricians, other physicians, school-based health centers, and providers of mental health
services;
new text end

new text begin (iii) outreach to educators and parents to increase awareness of PANDAS and PANS;
and
new text end

new text begin (iv) development of a network of volunteer experts on the diagnosis and treatment of
PANDAS and PANS to assist in education and research; and
new text end

new text begin (3) by October 1, 2019, and each October 1 thereafter, complete an annual report with
the advisory council's recommendations on the issues listed in clause (2), and submit the
report to the chairs and ranking minority members of the legislative committees with
jurisdiction over health care and education. The commissioner shall also post a copy of each
annual report on the Department of Health Web site.
new text end

new text begin Subd. 8. new text end

new text begin Expiration. new text end

new text begin The advisory council expires October 1, 2024.
new text end

Sec. 2. new text begin ADVISORY COUNCIL ON PANDAS AND PANS; INITIAL
APPOINTMENTS AND FIRST MEETING.
new text end

new text begin The appointing authorities shall appoint the first members of the advisory council on
PANDAS and PANS under Minnesota Statutes, section 144.131, no later than October 1,
2018. The commissioner of health shall convene the first meeting by November 1, 2018,
and the commissioner or the commissioner's designee shall act as chair until the advisory
council elects a chair at its first meeting. Notwithstanding the length of terms specified in
Minnesota Statutes, section 144.131, subdivision 3, at the first meeting of the advisory
council, the chair elected by the members shall determine by lot one-third of the advisory
council members whose terms shall expire on September 30 of the calendar year following
the year of first appointment, one-third of the advisory council members whose terms shall
expire on September 30 of the second calendar year following the year of first appointment,
and the remaining advisory council members whose terms shall expire on September 30 of
the third calendar year following the year of first appointment.
new text end