HF 439

1st Engrossment - 89th Legislature (2015 - 2016) Posted on 05/04/2015 03:44pm

A bill for an act
relating to health; requiring certain health care practitioners to deliver information
relating to trisomy 13, 18, and 21; imposing duties on the commissioner of
health; proposing coding for new law in Minnesota Statutes, chapter 145.

BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF MINNESOTA:

Section 1.

new text begin [145.471] PRENATAL TRISOMY DIAGNOSIS AWARENESS ACT.
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new text begin Subdivision 1. new text end

new text begin Short title. new text end

new text begin This section shall be known and may be cited as the
"Prenatal Trisomy Diagnosis Awareness Act."
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new text begin Subd. 2. new text end

new text begin Definitions. new text end

new text begin For purposes of this section, the following terms have the
meanings given them:
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new text begin (1) "commissioner" means the commissioner of health;
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new text begin (2) "deliver" means providing information to an expectant parent and, if appropriate,
other family members, in a written format;
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new text begin (3) "health care practitioner" means a medical professional that provides prenatal or
postnatal care and administers or requests administration of a diagnostic or screening test
to a pregnant woman that detects for trisomy conditions; and
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new text begin (4) "trisomy conditions" means trisomy 13, otherwise known as Patau syndrome;
trisomy 18, otherwise known as Edwards syndrome; and trisomy 21, otherwise known
as Down syndrome.
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new text begin Subd. 3. new text end

new text begin Health care practitioner duty. new text end

new text begin A health care practitioner who orders tests
for a pregnant woman to screen for trisomy conditions shall provide the information in
subdivision 4 to the pregnant woman if the test reveals a positive result for any of the
trisomy conditions.
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new text begin Subd. 4. new text end

new text begin Commissioner duties. new text end

new text begin (a) The commissioner shall make the following
information available to health care practitioners:
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new text begin (1) up-to-date and evidence-based information about the trisomy conditions that has
been reviewed by medical experts and national trisomy organizations. The information
must be provided in a written or an alternative format and must include the following:
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new text begin (i) expected physical, developmental, educational, and psychosocial outcomes;
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new text begin (ii) life expectancy;
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new text begin (iii) the clinical course description;
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new text begin (iv) expected intellectual and functional development; and
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new text begin (v) treatment options available for the particular syndrome for which the test was
positive; and
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new text begin (2) contact information for nonprofit organizations that provide information and
support services for trisomy conditions.
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new text begin (b) The commissioner shall post the information in paragraph (a) on the Department
of Health Web site.
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new text begin (c) The commissioner shall follow existing department practice to ensure that the
information is culturally and linguistically appropriate for all recipients.
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new text begin (d) Any local or national organization that provides education or services related
to trisomy conditions, may request that the commissioner include the organization's
informational material and contact information on the Department of Health Web site.
Once a request is made, the commissioner may add the information to the Web site.
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new text begin EFFECTIVE DATE. new text end

new text begin This section is effective August 1, 2015.
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